A Free Guide · For Two People
You're Still
Here
A short guide for the woman in your life with chronic illness, and the friend, family member, or partner reading this next to her. I wrote it for the gap between us, because almost nothing else is.
A note from me
This one is for both of you.
Most things written about chronic illness are written for one side of the relationship. The person who is sick reads one kind of thing. The people who love her read another. The two sets of language don't usually meet.
I made this one differently. It's meant to be opened together. Read together. Sat with together.
I wrote it for the gap. The one between the woman with chronic illness and the people who love her — friends, family, the partner, the parent, the sibling, the closest people in her life. The gap that opens up because nobody handed any of you instructions, and the standard scripts ("let me know if you need anything," "you seem better today") don't actually fit what's happening.
So this is the middle. For both of you, at the same time.
What's inside
Six short sections. One conversation.
Each section is a few pages. Each one ends with a question for the two of you to sit with together. You don't have to answer right away. You don't have to answer at all. Sometimes the question is the work.
- 01What you're both inside
- 02The medical part, and what it actually costs
- 03Who she is now, and who you are now
- 04Time, energy, and the plans you make
- 05The two of you
- 06One small thing, together
The opponent isn't her illness.
It's the gap between her life
and the systems built for somebody else.
— From the guide
Who's writing this
Hi, I'm Briana.
I have nine diagnoses and no roadmap to navigate them. So I built one. United Spoonies™ is the methodology that came out of that work — structural tools for women navigating chronic illness, free for anyone who needs them. The Navigation System is the book. You're Still Here is something different. Shorter, quieter, written for the people standing next to her.
I'm not a doctor. I'm not a therapist. I'm a person who lived inside this long enough to know what was missing, and I made it.
Read it together.
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